Early Bird Special: Register and pay by 9/22/2017 and receive a free Fighting for Kaiden Polo.
Date: Monday October 16, 2017
Tee off: 1:00pm Shotgun Start
Draft Beer provided all day.
Reception Dinner and 3 Hour Open Bar: following your round.
Trophies, Prizes, Silent Auction, and Raffles all day
What is Spinal Muscular Atrophy?
SMA (spinal muscular atrophy) is a disease that robs people of physical strength by affecting the motor nerve cells in the spinal cord, taking away the ability to walk, eat, or breathe. It causes progressive weakness until the body simply cannot continue. SMA is the number one genetic cause of death for infants.
What causes SMA?
SMA is caused by a mutation in the survival motor neuron gene 1 (SMN1). In a healthy person, this gene produces a protein that is critical to the function of the nerves that control our muscles. Without it, those nerve cells cannot properly function and eventually die, leading to debilitating and often fatal muscle weakness.
Who does it affect?
SMA affects approximately 1 in 6000 babies, and about 1 in every 40 Americans is a genetic carrier. SMA can affect any race or gender.
Our Mission Statement
The Fighting for Kaiden Foundation is a non-profit 501(c)(3) organization committed to enhancing the lives of those struggling with Spinal Muscular Atrophy (SMA) on multiple fronts. Directly, we strive to raise awareness of the disease on the local, regional and national levels. Our foundation provides need-based financial support to affected families for equipment, travel, and in the future, life changing medications. We understand the value of peer support and organize support groups and information for SMA - affected families in our area.
Our goals are driven by our devotion to improving the lives and finding a cure for those with SMA.